But there is no way out.
All there is is time, and whether or not time will provide me with healing or will leave me as one of the disabled ones.
In recent weeks, I have developed severe dry eye, dry nose, and dry mouth.
According to The Flox Report, these are bad prognosticators with regard to potential recovery from my fluoroquinolone poisoning. Click on the images below to view larger).
I haven't slept in 2 days despite multiple sleep aids.
Why? Because fluoroquinolone antibiotics can cause - and have caused in me - central nervous system damage.
I have a "floxed" friend who still cannot sleep more than 2 hours a night. She took her fluoroquinolone antibiotic 7 years ago.
This scares the shit out of me...
Frankly, many of the people I read about who get better are people who have a severe acute reaction, but who are improving by 6 months or so. The Flox Report has a chart for this also. Basically, if you're seeing improvements by month 6, that's a good sign. If, like me, you have new and worsening symptoms by month 6... well, it's bad.
Many severely poisoned persons like myself never get better. Some do get better, but it takes years. Because of my dry eye, nose, and mouth syndromes, I am very very frightened that I may never improve. I have between 40 - 50 symptoms presently, and new ones come on all the time. I have huge bald patches on my head.
I have so many symptoms that only the worst of the worst poisoned people get.
I need help, but there is no help for me.
Fluoroquinolones damage mitochondrial DNA. If too much is damaged, you live a life of disability.
All of this pain, and I never even had an infection...
Here is a rundown of recovery for severely poisoned persons, if they ever recover at all.
I fear I may, based on my timeline and symptoms, be the blue line on this graph. Which is, according to the report, the worst you can be:
I pray, I try to eat well. I supplement. I try to take as few medicines as I can just to make it through the day. Nothing helps.
If it'll let you know what I am dealing with, here's a relatively comprehensive list of my symptoms, though I am sure I have forgotten some:
Inability to see clearly
Floaters in vision
Pain behind the eye
Severe dry eye
Extreme panic attacks
burning in the hands
burning in the feet
numbness in the hands
numbness in the feet
"queasy quads" - a feeling as if my quads are being electricuted
Fevers or chills every day - temps range from 98 degrees to 100.4 degrees
Variable blood pressure
General flu-like feeling
Heart pain/shortness of breath
Extreme hair loss
Nerve pain throughout the body. Feels like sunburn or something.
Cracking joints throughout the body
early onset osteoarthritis
Ear pressure/ ear pain
widespread joint pain
body-wide tendon pain
Each day I feel as if I am dying. And I cannot even get any sleep.
You know the above is not even a comprehensive list of everything fluoroquinolones can cause?
I am really, really struggling. I am really, really suffering.
Doctors often don't believe me. Or they will try to associate 1 or 2 symptoms with something else instead of looking at the whole picture. Like with my hair loss. They keep saying stress can cause hair loss. Well, yes it can. But it doesn't also cause scalp redness and baldness in patches. It also doesn't explain my other 50+ symptoms that all came on after taking the fluoroquinolone and steroids.
Someone please tell me I will still get better. Even if I am the worst case scenario in The Flox Report. Please, please - even with the dry sicca syndromes - am I going to get better? Please don't let me be permanently disabled and bedbound. Please.